AIDS, time, and its stubbornness: sociality, emotions, and policies in an on-line social network

Authors

  • Lucas Pereira de Melo Universidade de São Paulo - Campus Ribeirão Preto

DOI:

https://doi.org/10.11606/issn.2316-9133.v29i2pe179821

Keywords:

HIV/AIDS, Social suffering, Temporalities, Virtual ethnography, Health policies

Abstract

From an ethnographic research with people who lives with HIV/AIDS in a group on Facebook, this article problematizes the relationship between disease, time, sociality, emotion, and state-owned practice. In this sense, the trust on the HIV infection as chronic illness and the posts’ members about the governmental actions that dismantle the Brazilian AIDS policy as an element of the group’s sociality was analyzed. Those posts generates ‘tretas’ (a kind of conflict) between the group’s members. The interpretation of the meanings attributed by the informants to the public health policies, and the comprehension of the political and emotional grammars of the ‘tretas’ allows analyses the State place into these policies. The State way to exercise its power through knowledge, discourses, practices, public policies, and technologies’ production that aims to ease up suffering’s experience, extends life, prevents disease and death, without highlight that these acts are dependents from its own actions are the most relevant aspect of this study. In addition, the manner how the State’s interventions to HIV/aids epidemic’s manager and deal cloud, intentionally or not, intensify experiences of social suffering are problematizes in this paper.

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Author Biography

  • Lucas Pereira de Melo, Universidade de São Paulo - Campus Ribeirão Preto

    Professor in  the Ribeirão Preto Nursing School at the University of São Paulo

References

AGOSTINI, Rafael; ROCHA, Fátima; MELO, Eduardo; MAKSUD, Ivia. (2019). "A resposta brasileira à epidemia de HIV/AIDS em tempos de crise". Ciência & Saúde Coletiva, Rio de Janeiro, v. 24, n. 12, pp. 4599-604, 2019. https://doi.org/10.1590/1413-812320182412.25542019

BASTOS, Cristiana. (2002). Ciência, poder, acção: as respostas à Sida. Lisboa: Imprensa de Ciências Sociais.

BIEHL, João. (2007). Will to live: AIDS therapies and the politics of survival. Princeton: Princeton University Press.

BIEHL, João. (2011). "Antropologia no campo da saúde global". Horizontes Antropológicos, Porto Alegre, v. 17, n. 35, pp. 257-96. https://doi.org/10.1590/S0104-71832011000100009

CUNHA, Claudia Carneiro da. (2012)."Os muitos estudos de uma "sexualidade soropositiva": o caso dos jovens vivendo com HIV/AIDS". Sexualidad, Salud y Sociedad – Revista Latino-americana, Rio de Janeiro, v. 10, pp. 70-99. https://doi.org/10.1590/S1984-64872012000400004

DAMASCENO, Éverson de Brito; CORTEZ, umena Cristina de Assunção; FERREIRA, Fábbio de Souza; SILVA, Mercês de Fátima dos Santos; MELO, Lucas Pereira de. (2019). “Algo tão simples de viver e controlar, mas difícil de compartilhar e defender”: HIV/Aids, segredos e socialidades em uma rede social on-line. Interface – Comunicação, Saúde, Educação, Botucatu, v. 23, p. e180506. https://doi.org/10.1590/interface.180506

FARMER, Paul. (1997). "On suffering and structural violence: a view from below". In: KLEINMAN, Arthur; DAS, Veena; LOCK, Margareth (ed.). Social suffering. Berkeley: University of California Press. pp. 261-83.

FARMER, Paul. (2003). Pathologies of power: health, human rights, and the new war on the poor. Berkeley: University of California Press.

GIDDENS, Anthony. (1991). As consequências da modernidade. São Paulo: Editora Unesp.

HARAWAY, Donna. (1995). "Saberes localizados: a questão da ciência para o feminismo e o privilégio da perspectiva parcial". Cadernos Pagu, Campinas, v. 5, pp. 7-41, 1995. https://periodicos.sbu.unicamp.br/ojs/index.php/cadpagu/article/view/1773

KLEINMAN, Arthur; DAS, Veena; LOCK, Margareth. (1997). " Introduction". In:____. Social suffering. Berkeley: University of California Press. pp. ix-xxvii.

MARX, Karl; ENGELS, Friedrich. (2005). Manifesto comunista. 4 reimp. São Paulo: Boitempo

McGRATH, Janet W; WINCHESTER, Margaret S.; KAWA-MAFIFIGI, David; WALAKIRA, Eddy; NAMUTIIBWA, Florence; BIRUNGI, Judith; SSENDERGYE, George; NALWOGA, Amina; KYARIKUNDA, Emily; KISAKYE, Sheila; AYEBAZIBWE, Nicolas; RWABUKALI, Charles B. (2014). "Challenging the paradigm: anthropological perspectives on HIV as a chronic disease". Medical Anthropology, Philadelphia, v. 33, n. 4, pp. 303-17 doi: 10.1080/01459740.2014.892483

RABINOW, Paul. (1996). Essays on the anthropology of reason. Princeton: Princeton University Press.

SANGARAMOORTHY, Thurka. (2018). "Chronicity, crisis, and the ‘end of AIDS’". Global Public Health. London, v. 13, n. 8, pp. 982-96. doi: 10.1080/17441692.2018.1423701

SEFFNER, Fernando; PARKER, Richard. (2016). "Desperdício da experiência e precarização da vida: momento político contemporâneo da resposta brasileira à aids". Interface – Comunicação, Saúde, Educação, Botucatu, v. 20, n. 57, pp. 293-304. https://doi.org/10.1590/1807-57622015.0459

SHORE, Cris; WRIGHT, Susan (ed.). (1997). Anthropology of policy: critical perspectives on governance and power. London: Routledge.

TREICHLER, Paula. (1987). "AIDS, homophobia and biomedical discourses: an epidemic of signification". October, Cambridge, v. 43, p. 31-70. https://doi.org/10.1080/09502388700490221

VITORINO, Maíra Moraes; RENAULT, David. (2020). A irrupção da fake news no Brasil: uma cartografia da expressão. Comunicação & Sociedade, São Bernardo do Campo, v. 42, n. 1, pp. 229-59. https://www.metodista.br/revistas/revistas-metodista/index.php/CSO/article/view/9398

Published

2020-12-31

Issue

Section

Articles and Essays

How to Cite

Melo, L. P. de. (2020). AIDS, time, and its stubbornness: sociality, emotions, and policies in an on-line social network. Cadernos De Campo (São Paulo, 1991), 29(2), e179821. https://doi.org/10.11606/issn.2316-9133.v29i2pe179821